Amy Silverstein, a celebrated author whose two memoirs, together with “Sick Girl,” from 2007, recounted her grueling but joyful odyssey by way of a life that required two coronary heart transplants, died on May 5. She was 59.
Her husband, Scott Silverstein, confirmed her dying however didn’t say the place she died. The trigger was most cancers, which Ms. Silverstein had attributed to many years of post-transplant medicines. She lived in Chappaqua, NY
Hers was a dying foretold — by Ms. Silverstein herself — in an opinion essay revealed in The New York Times on April 18.
“Today, I’ll clarify to my wholesome transplanted coronary heart why, in what could also be a matter of days or even weeks at finest, she — nicely, we — will die,” Ms. Silverstein wrote. Recounting these ideas, which arose in the future on her common vigorous jog, she continued: “I slide my hand throughout my chest and communicate aloud, palm to my coronary heart’s crisp beating. ‘I’m so sorry, candy lady.’ She shouldn’t be used to listening to me this manner, exterior my head, past the physique we share.”
By that time, the main points of her life with successive hearts that weren’t her personal (each got here from 13-year-old ladies) have been acquainted to legions of admirers by way of her many journal articles and tv appearances, in addition to her two books, together with “My Glory Was I Had Such Friends,” from 2017.
Each transplant — the primary was in 1988, when she was 24 and a second-year legislation scholar at New York University — gave her a new lease on life, as Ms. Silverstein typically recounted with deep gratitude. But under no circumstances did her life return to what it was.
“People do not acknowledge that it is onerous as a result of I’m not toting round an oxygen tank, and I look like high quality,” she mentioned in a 2007 interview with the journal Marie Claire. “I form of stay a disguised life. When I rise up from the desk after a lengthy dinner with buddies, they simply stroll to the door. I’m strolling, and my coronary heart is saying, ‘What are you doing?’ Most individuals take without any consideration that while you stand, your coronary heart hastens instantly. Mine would not and I get a feeling of ‘mistaken’ in my physique each time.”
Amy Jill Shorin was born in Queens on June 3, 1963, the youthful of two daughters of Arthur T. Shorin, who was chief government of Topps, the sports activities playing cards and collectibles firm, and Arlene (Fein) Shorin. Amy, whose dad and mom later divorced, grew up in Great Neck, NY, on Long Island.
A member of the Phi (*59*) Kappa honor society, she graduated from New York University in 1985 with a bachelor’s diploma in journalism earlier than deciding on a legislation profession.
In her first 12 months in legislation faculty, she started experiencing mysterious signs, together with tightness in her chest, digestive points and fainting spells. She wrote in “Sick Girl” that she would “marvel what number of different younger girls had ever stared into a rest room bowl full of their very own blood-streaked vomit, flushed it down, and dashed off to a two-hour seminar in constitutional legislation. “
A 12 months later, she was identified with congestive coronary heart failure. “The heaviness in my chest turned out to be due to not poor digestion, as I’d thought, however slightly to a grossly enlarged coronary heart that was actually bursting out of me,” she wrote.
As her situation deteriorated, Ms. Silverstein rose to the highest of the ready listing for a donor coronary heart, which she acquired at Columbia-Presbyterian hospital in New York. It was solely as she recovered from the operation that she started to be taught the worth of coronary salvation.
“With the medicines that she took and the repeated infections, she felt dangerous at some level nearly each single day,” Mr. Silverstein mentioned in a telephone interview. The highly effective medicines used to stop her immune system from rejecting the donor coronary heart as a overseas object had numerous negative effects, he mentioned, including, “She would carry round a bag routinely in case she needed to throw up.”
Ms. Silverstein endured therapy for repeated infections, a number of rounds of pores and skin most cancers and a selection of different situations associated to a weakened immune system, her husband mentioned. The couple discovered themselves settling in for interminable waits in New York City hospital emergency rooms to cope with one complication or one other on a month-to-month foundation.
To examine for indicators of rejection, she needed to endure frequent coronary heart biopsies during which docs “run a catheter down by way of your blood vessels and pluck items of your coronary heart out,” Mr. Silverstein mentioned. “She had over 90 of them.”
After “Sick Girl” was revealed, Ms. Silverstein acquired reams of fan letters from different transplant recipients, hailing her for her braveness in bringing to mild the odd combine of pleasure and distress that may accompany life with a new organ — what she referred to as the “gratitude paradox.”
She additionally attracted hate mail as a vocal critic of the well being care business. “Organ transplantation is mired in stagnant science and antiquated, imprecise drugs that fails sufferers and organ donors,” she wrote in her current Times essay, including that the every day use of transplant medicine over years or many years could cause a host of different life-threatening situations. situations, together with diabetes, uncontrollable hypertension, kidney harm and most cancers.
Despite that destabilizing regime, Ms. Silverstein maintained a vigorous life, returning to complete legislation faculty after her first transplant, then working towards briefly earlier than abandoning the occupation to lift a son, Casey, and, finally, to jot down.
Amid a life of cautious regimentation, together with common and intense train and adherence to a strict weight loss plan, avoiding even the smallest pat of butter or sip of alcohol, she took up the guitar and songwriting. Once, within the late Nineteen Nineties, she appeared as a solo act at the Bottom Line nightclub in Greenwich Village.
In addition to her husband, Ms. Silverstein is survived by her son in addition to her father and stepmother, Beverly Shorin. Her sister Jodie Hirsch died in 2020.
When her first donor coronary heart succumbed to vasculopathy — vascular lesions that may be brought on by some medicines — she underwent a second transplant surgical procedure in Los Angeles in 2014. Friends from across the nation maintained a spreadsheet to schedule their visits successively over the course of her practically three-month hospital keep “so she by no means needed to spend a evening alone within the hospital,” her husband mentioned.
That expertise grew to become the idea of “My Glory Was I Had Such Friends,” an adaptation of which is at present in improvement as a restricted sequence by Warner Bros. TV and Bad Robot, the media firm run by the director and producer JJ Abrams and his spouse, Katie McGrath, Mr. Silverstein mentioned.
But in a single sense, none of her human relationships have been fairly as intimate because the one she had with the roughly eight-ounce bundle of another person’s muscle beating beneath her rib cage.
“On our every day runs, when my ’70s yacht rock playlist propels every stride,” she wrote within the Times essay, “this coronary heart from a 13-year-old donor revolts in my physique with thumps of Oh puh-lease — and we giggle collectively, selecting up our tempo to dash.”